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Daisy Find out more about Daisy
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  • #1

    Back to Cleveland

    Hello All

    The cardiologists in Florida have been wanting me to have an ICD for about a year now. I was diagnosed about four years ago. June 2000, I visited Dr. Lever at the Cleveland Clinic. To make a long story short, I e-mailed him and told him I was concerned and nervous. The very next day Dr. Lever personally called me. I am traveling back to Ohio on Dec. 24 to meet with him. If he tells me to have this procedure, then I will.

    Happy Holidays to all.
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  • #2
    Re: Back to Cleveland

    isn't that the best? nishimura at mayo called me during the day and i didn't get the message till 7 ish that night and i didn't think that he would be around, but he called me the next morning at 8am to be sure and reach me. i'd never even SEEN the man!

    specialists. they rock.

    (yes, many pcps and local doctors are great, too. sadly our system doesn't always give them the ability to be as attentive as some of them would like to be.)

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    • #3
      Re: Back to Cleveland

      I can tell you all something about our wonderful HCM specialists... They are a real cut above the typical doctors I have meet. These special people understand this condition, understand the concerns we have, understand that others may not have a good feel for the condition and that we need there special skills.

      In the 8 years I have worked with these fine people I have found them to be responsive, caring and committed to the patients above and beyond everything else!

      I am am happy you are being seen by a caring doctor and that you will follow the suggestions of those who understand the condition.
      I wish you a happy holiday!

      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

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      • #4
        Re: Back to Cleveland

        Daisy:
        Dr. lever is awesome and caring!! You will be in good hands with a leading expert in HCM. I have had nothing but good experiences with dr. lever.

        Good Luck, and Best of Health!!

        Tricia

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