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How did you get used to this hockey puck (aka S-ICD)>


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  • How did you get used to this hockey puck (aka S-ICD)>

    Hello HCMA community - I've trolled the forums for a bit here, and they've been very helpful and interesting. I had an S-ICD implanted 4 weeks ago, and I'm having a hard time getting used to it. I'm 46, relatively fit and only discovered that I had HCM a few years ago. Rationally, I understand and appreciate the value of the ICD as a backup device, but practically, it feels very awkward and strange in my body. How did you get used to this hockey puck? Any tips for feeling less strange sitting in cars, wearing backpacks, or other normal things?

  • #2
    Hi John, Welcome, I do not have an ICD so not much help on your issue....sorry. I did want to say that The HCMA has a very active Facebook group, there fore this forum tends to be very quiet. However, I believe there are some online support groups specifically for people within ICDs. You may want to try a google search for one of those groups or look for one on Facebook.
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani


    • #3
      Thanks, Jilly -- appreciate the suggestion and I'll join that group.


      • #4
        You will get used to it, it just takes time. I've had mine since 2011 and I was very aware of it for a long time, but now I hardly notice it. Sometimes a backpack or seatbelt sits on it the wrong way, but it's rarely noticible. My dad had one of the first single lead ones, and it was huge and bulged out of his chest. I don't know how he got used to it, but he did. I just joined this forum, but also the facebook group so we'll see how this goes.