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ICD Lead Disconnected

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JMDeetjen Diag 12/07, did not really understand my condition until afib 02/14. age 62. 3 daughters, 3 grandsons that i would love to coach during the next few years. Oh yea Soccer, Still try to play. Find out more about JMDeetjen
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  • ICD Lead Disconnected

    During My ASA in July i was taken back into surgery To get an ICD that Same Afternoon. My hearth had gone CHB once the first .5ml of alcohol was infused.5 month check up at my local epidemiologist and i find out that the atrial lead is totally disconnected. There is some good news to this story i'm no longer CHB and at this point i don't know what to do. Has anyone had this happen to them and what was your course of action.

  • #2
    JM.....I do not have an ICD or a pacemaker, but I will take a stab at this because I feel bad that no one has replied to you. There are two issues here....the pacemaker portion of your device and the ICD portion. The atrial lead is essential for dual chamber pacing which someone in complete heart block would need. You say you are no longer in complete heart block YAY! However, I know that scarring does continue to grow after alcohol ablation... So I wonder if you are still at risk for recurrence of CHB?. That question would best be answered by the cardiologist that did the procedure and the electro physiologist .
    I would think that as long as the ventricular lead is in place the ICD would continue to sense and pace or deliver a shock as needed.......This answer is based on my knowledge as a retired ICU nurse....But I hope some ICD owners might chime in here.
    What does your cardiologist say? Are they wanting to go in and fix the atrial lead? Who do you see for your HCM management? And where did you get your procedure. Done? We'd love to here more about it in the septal reduction section.....
    After years of symptoms:
    Officially Diagnosed HOCM 2006
    Myectomy 3/11/13 at non-COE
    Extended Myectomy 7/23/14
    At Mayo with Dr. Joseph Dearani

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    • #3
      well i was told my my local ep guy that i was no longer CHB. That being said i have called the folks at John Hopkins since they did the implant. I'm In between jobs, thus in between insurers. So i'm gathering all of the info before going back to Hopkins early next year. In the Dr. Office they did turn off the ICD completely for a few minutes and i had no issues. My local guy did say " i don't know what to do with you"

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      • #4
        Well....I hope he turned the ICD back on ! LOL..... Since that's your insurance policy should you go into Vtach or Vfib. It is awfully frustrating and scary to have your local cardiologist say he doesn't know what to do with you! Research the symptoms of complete heart block ..... I think it is syncope, fatigue, passing out maybe SOB but I'm not positive. Any signs of CHB call 911 get to an ER..... You will need a temporary pacemaker immediately until they can get in and fix the atrial lead or put in a new one. Here's Hoping the CHB is history.
        After years of symptoms:
        Officially Diagnosed HOCM 2006
        Myectomy 3/11/13 at non-COE
        Extended Myectomy 7/23/14
        At Mayo with Dr. Joseph Dearani

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        • #5
          Hi JillC. so it is now jan 2016 and i'm still here. Feeling better that i have ever felt in years. forgot stronger also. My new insurance is now effective so i can go back to Hopkins to find out what is going on with the ICD.

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          • #6
            Glad to hear that you are experiencing good results from your septal ablation! Also good to hear you soon will be seeing the experts about your ICD. Be sure to let us know about your visit to Hopkins.....we all learn so much from each other.
            After years of symptoms:
            Officially Diagnosed HOCM 2006
            Myectomy 3/11/13 at non-COE
            Extended Myectomy 7/23/14
            At Mayo with Dr. Joseph Dearani

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            • #7
              Several years ago, my ICD fired. My doctor wanted me to go on a new medicine, but since it would lower my heart rate, the ICD was made dual-chamber (with a pacemaker). One week later, my device was beeping. I had it checked and it was determined some thing was lose. My doctor investigated and noted the lead had been compromised and had to be changed. It was a Friday and I had to stay in the hospital until Monday to keep me safe. Changing the lead was a step up in seriousness as they did not know how engrained the lead was in my heart. They took great care and the surgery was a success.

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              • #8
                Well it is now jan 2017. After 2 visit s at Hopkinks DR Marine told me that i did not need any additional appointment. Even though the lead to my right atria is a bit loose, my right bundle branch has fully recovered. So good news. Hoping for status quo.

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