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Thanks for my life!


About the Author


sueb My cardiomyopathy is caused by Fabry Disease. Find out more about sueb
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  • Thanks for my life!

    Thank you Lisa and all involved on this board for saving my life. I wouldn't have pursued or accepted my doctor's recommendation to have an ICD implanted if it hadn't been for the information I found on this board. Last weekend, after having my ICD for 13 months, I went into ventricular fibrillation and landed out cold on the bathroom floor. My ICD fired and I woke up slightly bruised and ready to get on with my life. The outcome could have been far different without my ICD. Thanks!


  • #2
    Re: Thanks for my life!

    Sue, I am soooo glad that you're all right. How do you feel now?


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3
      Re: Thanks for my life!

      Sue, What a dramatic story! I'm so glad you had the ICD. Hope things are going well for you now. Linda


      • #4
        Re: Thanks for my life!

        Appreciate your responses. I feel just fine! And very lucky! Sue


        • #5
          Re: Thanks for my life!

          this is why the HCMA exists and I'm so happy to hear that it made a difference in your life ---literally!



          • #6
            Re: Thanks for my life!

            I am in TEARS... happy ones... YOU MADE MY DAY! I am so very happy for you and your family that you had your ICD. I must admit I am happy for all of us too...we still have you with us. I think I should also give a great big THANK YOU to all the doctors and those at the device companies for caring about us all and doing all the work to get us the treatments we need!
            I know many of our docs read the board ... BJM - thanks for keeping the faith with ICD's Sue is here because of YOU!

            BIG hugs and best wishes!
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)