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all wired up with my new icd

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  • all wired up with my new icd

    hello everyone. Well last tuesday I got my new icd the medrtonic marquis model with a backup pacer in it. They don't think I'll need the backup pacer but it's a precautionary step. I am so sore on my chest and on my left arm and shoulder and I took the bandage off and can see the scar underneath the tape but I'm trying to grin and bear it. I have several limitations that include not driving to work for 2 weeks so I got really bad cabin fever. But I find just going out somewhere for dinner or somewhere I nearly exhaust myself so I'm taking it easy. I am taking tylenol codeine 3 at night because I find that is when the pain is the worst. I can tell this is going to be a long road. Do you guys have any ideas as to over the counter meds that I can take for the pain. I find it strange that I can feel the wires in my device move many times but my doc said it's normal to feel that at first. One of my friends called me a bionic woman lol.I don't know why but I found that kinda cool. Well I am hoping to get the new harry potter book today and tomorrow and to curl up and let the adventure begin. this one is slowly but surely starting since I've got my new icd. God bless you all and please write soon. I find my email box empty
    Kimberly
    Kimberly K. Plaster

  • #2
    Re: all wired up with my new icd

    Kimberly,
    You will adjust to your device faster than you may think. In a few weeks you almost forget that it is there! YEH
    Motrin helps me as I can not take tylenol ( I am strange! )
    One of the things that will take more adjustment then you may have thought it the style of bra you wear! Depending on your shape and size styles that were once comfortable may no longer be with the device in place. You will want to try some of yours on then maybe head to the store next week and shop a little for a new style.
    At this point the guys must be scratching there heads ... but you girls with ICD's know what I am talking about.

    Best wishes!
    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

    Comment


    • #3
      Re: all wired up with my new icd

      Hi Kimberly,

      I got my ICD in the end of February, and I really found that the pain didn't really bother me too much after the first couple of weeks. The first week, I only took motrin for the pain. I never took the narcotic pain meds at all. You should not be afraid to use the arm normally. Just be careful not to lift above the shoulder. My surgeon told me this, and it really helped the soreness heal quickly. Having a frozen shoulder would be worse, I promise!

      As to the bra comment, Lisa told me that too, but I have to tell you that my old bras fit fine, even the underwire ones. My device is placed subpectorally under the arm, and you can't see it at all, and can barely feel it. The only bad part was that I have 2 incisions, one for the leads in the chest, and one where the generator is, under the arm.

      I have a 19 mo. old son, and I was lifting him at about 2 - 3 weeks after surgery. I was just careful to protect the area.

      Anyway, it's been 4 mos. and I don't even think about the device anymore. It hasn't hurt for a long time. Actually, that's not true, I do think about it whenever my heart starts to beat erratically...I don't get so scared anymore. In fact, I have had some episodes since I got the ICD that probably would have had me at the nearest emergency room had I not had the unit. It definitely gives me peace of mind.

      Good luck.
      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

      Comment


      • #4
        Re: all wired up with my new icd

        hi Kim I took vicodin and lortab for a few weeks and was allowed any over the counter for a few months but after a while I tried going back to work and then to discover that my heart appreciated the slower pace at home so I gave in and became a fulltime stay at home mom. Just listen to your body andbe careful. I keep a journal just to help out, my memory isnt so good now and it helps the doc too .lol I make jokes too, some people it helps until youre used to it lana
        Lana

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        • #5
          Re: all wired up with my new icd

          Talk about names. After i got my implant my friend started calling me a borg. He saw the serial number on my device and now my nickname is 1880 of 2000. ( like 7 0f 9 from star trek). Now that I have a medi-port as well I really get it. When I was in the hospital he was joking with me and said I had to rejoin the collective for a while and regenerate! I wanted to smack him but was too weak!

          thought it was cute!

          Mary

          Comment


          • #6
            Re: all wired up with my new icd

            I had my ICD checked today... my battery is showing its age... looks like I am on the down slop toward replacement... I have had this one since April 2001 - but was pacing for the first year of the device - I have since turned the pacer to demand only - it will only pace if my rate is under 40 - but it looks like I have 1 year left then ...back to the OR...OH JOY!

            BUT I do LOVE MY BOX!


            Just hate surgury!

            Lisa
            Knowledge is power ... Stay informed!
            YOU can make a difference - all you have to do is try!

            Dx age 12 current age 46 and counting!
            lost: 5 family members to HCM (SCD, Stroke, CHF)
            Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
            Therapy - ICD (implanted 97, 01, 04 and 11, medication
            Currently not obstructed
            Complications - unnecessary pacemaker and stroke (unrelated to each other)

            Comment


            • #7
              Re: all wired up with my new icd

              Lucky you. I got mine Friday and.. ow ow ow ow ow ow.... The ibuprofen helps. I don't like the tylenol 3 the prescribed. I never have liked codine. I can take it okay, just don't like it. Didn't help as much with the pain anyway. It is now monday and I can move my arm more regularly. I'm looking forward to wednesday or thursday when I'll probably be feeling little pain. You're probably already there! I'm jealous. I try to use my left arm when I can (nothing over 10 lbs the doctor said and of course no over the head), but right now the shoulder just hurts too much. Of course it hurts to laugh or cough right now, but I'm hoping that will go away too. As well as these stupid muscle spasms. Feels like I'm getting little shocks in my shoulder as if there are exposed wires somewhere, but I know its just spasms (they checked in the hospital and the ICD wasn't going off or anything... and I know it would have been more than LITTLE shocks).

              Brandon
              Life is a xerox copy and someone needs to add more toner.

              Comment


              • #8
                Re: all wired up with my new icd

                Originally posted by Toogoofy317
                Talk about names. After i got my implant my friend started calling me a borg. He saw the serial number on my device and now my nickname is 1880 of 2000. ( like 7 0f 9 from star trek). Now that I have a medi-port as well I really get it. When I was in the hospital he was joking with me and said I had to rejoin the collective for a while and regenerate! I wanted to smack him but was too weak!

                thought it was cute!

                Mary
                I kept telling my wife I was now a cyborg... AFTER the anastesia wore off of course. She kept telling me that she KNEW being a computer engineer wasn't good. My brain just HAD to have some hardware/software someplace. The worst part is that now I want to download my software and disassemble it to find out what I'm doing.

                Brandon.
                Life is a xerox copy and someone needs to add more toner.

                Comment


                • #9
                  Re: all wired up with my new icd

                  Brandon--Congratulations on your new "appliance." It will hurt less as time goes on and by one month it should be fairly well settled in. What a great device you have! Mine has saved my life once and saved my sanity many times when I felt "funny" and knew my ICD would take care of any problems. Best wishes on a quick and comfortable recovery.

                  Sue

                  Comment

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