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  • "DIZZY"

    Hi all! So far I have been very happy with the support here and finally think emotional relief lies ahead. I recently saw my cardio doc after having "heart failure" while having tubial ligation done. Although he doesnt forsee any immediate danger with my "new" daily routine", he has informed me that if I am facing major surgery where they go in and shave the excess tissue. He keeps saying how he has never seen a case so severe as mine ( both muscle walls are so thick that they literally touch and hardly any blood flow). He is very straight forward and honest with me. My first visit everyones jaw dropped at how bad it was, leaving the room only to come back with more people to see it for themselves. He once said he is amazed that I havent had any problems till now. In fact I wasnt having any symptoms. hubby begged me to get certified to dive. At my physical it was found. Anyway, the last week, I started getting "dizzy" everytime I stood up. The dizziness seemed to be worse than others. Just very concerned, although I feel more worn down lately as apposed a few weeks ago I felt great. No medication or diet changes. Any input would be greatly appreciated. Thank you in advance!!!!!!

  • #2
    Re: "DIZZY"

    It is time to take some action. I think you are well advised to seek a specialist who can preform the myectomy for you and evaluate your over all condition.
    It is common to be dizzy with HCM, however I am concerned that your symptoms appear to be changing quickly. Please do not think that you heart is "still growing" it is not, that is stable...it is symptoms that are changing and no one can be sure why..but know that is happens all the time.
    Check the links page for centers to contact.
    Be well,
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)


    • #3
      Re: "DIZZY"

      Does your cardiologist know about these new symptoms? Talk to him soon and discuss a plan of action. Call Lisa after Tuesday and learn a bit more about the info HCMA has to offer. Sounds like you are having a sudden change in symptoms and this is reason for concern. Take care and keep us posted. Linda