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Pacemaker/ICD possible without hearth cath?

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  • Pacemaker/ICD possible without hearth cath?

    Is it possible to get a pacemaker or an ICD without getting a heart cath?
    Thanks.

  • #2
    Re: Pacemaker/ICD possible without hearth cath?

    Hi,

    It depends on your situation. If you really need an ICD, then they are just going to put it in you. As for pacing, that is a whole other ball of wax. They need to program the pacer while you are "open" and they may be suggesting an EP study to determine if you need a pacer. I really can't say yes or no b/c everyone's situation is different.

    If you are being pressed for a cath, get a second opinion. The HCMA office can help you find someone.

    S

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    • #3
      Re: Pacemaker/ICD possible without hearth cath?

      I have an ICD/pacer and I did not have a catheritization or EP study. In fact, I chose another doctor to implant, and sought three other 2nd opinions when my doc wanted to do one.
      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

      Comment


      • #4
        Re: Pacemaker/ICD possible without hearth cath?

        Sarah & Cynaburst,
        Thanks for your replies. Sarah, I did not mean to mislead you. A ICD or pacemaker has not been recommended for me yet. A few years back, after going to the top dosage of the beta blocker I am on, I remember the card. saying "the next step is a pacemaker." I am justing trying to think things out for the future. After my cath-gone-bad two decades ago, I am still more terrified at the thought of a cath than a pacemaker or open heart surgery.
        Anyway, thanks for your reply.

        Comment


        • #5
          Re: Pacemaker/ICD possible without hearth cath?

          Hi,

          Well, I have to tell you I'm a little skeptical of there being nothing inbetween a betablocker and a pacemaker. There are many antiarrhythmia medications on the market now and any HCM specialist worth his/her salt will recommend them to you if you need them.

          Please call the office to get some names and think about seeing a specialist. Also, pacemakers are not the hot ticket answer many doctors thought they were in the early 90s. I suspect that your treatment options are wider than you have been led to believe.

          take care and keep us posted,

          S

          Comment


          • #6
            Re: Pacemaker/ICD possible without hearth cath?

            Cynaburst,
            Thanks for your reply. It has been comforting (somewhat, cant totally relax with this all hanging over our heads).
            Anyway, where is the cardiologist that finally put in your icd/pacer with no heart cath?
            Thanks.
            Cindy

            Comment


            • #7
              Re: Pacemaker/ICD possible without hearth cath?

              Cindy - My EP is here in Los Angeles, but I know several people who have ICDs who haven't ever had a cath. In fact, I think more people get ICDs w/o a cath than with.

              My docs wanted me to have ICD also with pacemaker turned on so I can tolerate higher doses of meds. I couldn't tolerate more than 25 mg. of atenolol w/out the pacer, and am now on 100 mg. with no bradycardia or low blood pressure like I had before, so it can help this too.

              Good luck. The implantation really wasn't any big deal. I don't even think about it anymore, and have only had device a few mos.
              Daughter of Father with HCM
              Diagnosed with HCM 1999.
              Full term pregnancy - Son born 11/01
              ICD implanted 2/03; generator replaced 2/2005 and 2/2012
              Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

              Comment


              • #8
                Re: Pacemaker/ICD possible without hearth cath?

                Do you know if the same is true of a pacemaker? thanks

                Comment


                • #9
                  Re: Pacemaker/ICD possible without hearth cath?

                  Hi,

                  ICDs and pacemaker implantation is almost identical, so I wouldn't worry too much. You can read all the ICD/pacemaker stories by using the search function, too.

                  S

                  Comment


                  • #10
                    Re: Pacemaker/ICD possible without hearth cath?

                    It's easier to implant a pacemaker than an ICD.
                    Daughter of Father with HCM
                    Diagnosed with HCM 1999.
                    Full term pregnancy - Son born 11/01
                    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
                    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

                    Comment


                    • #11
                      Re: Pacemaker/ICD possible without hearth cath?

                      Thank you both. I did find that pacemaker/icd board, Sarah, thanks for suggesting it.
                      Thanks again.
                      Cindy

                      Comment


                      • #12
                        Re: Pacemaker/ICD possible without hearth cath?

                        It is "harder" to get ICD's in because it requires 2 leads - not all pacers have 2 leads - also the ICD ventricular lead is larger than a pacer lead. You also must test the ICD - which is holds more risk than a pacer.

                        Lisa
                        Knowledge is power ... Stay informed!
                        YOU can make a difference - all you have to do is try!

                        Dx age 12 current age 46 and counting!
                        lost: 5 family members to HCM (SCD, Stroke, CHF)
                        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
                        Therapy - ICD (implanted 97, 01, 04 and 11, medication
                        Currently not obstructed
                        Complications - unnecessary pacemaker and stroke (unrelated to each other)

                        Comment

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