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Lisa Salberg Find out more about Lisa Salberg
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  • GOOD news!

    I will leave out names here and allow the family to share details when and if they wish...
    BUT....
    I was notified yesterday that one of our members, a child, had his ICD go off while at school. It appears that he was in a tachy rythm at about 220 beats and the device fired restoring normal sinus rythm.
    What is amazing about this little guy is that he was in gym class while this happened and simply went about the rest of his day. When his parents picked him up after school they were told his device went off.
    This young man is tough as nails!

    It looks like if the ICD was not there this posting would not have been a happy one.

    This really made my day for many reasons!
    1. This young man has a chance of a meaningful future!
    2. He was so cool about the entire event!
    3. His parents found the HCMA 3 years ago and we were able to help them find quality care (which is why he had the ICD implanted)
    4. The HCMA WORKS!

    So big hugs to my little pal and best wishes to his family!

    Lisa
    Knowledge is power ... Stay informed!
    YOU can make a difference - all you have to do is try!

    Dx age 12 current age 46 and counting!
    lost: 5 family members to HCM (SCD, Stroke, CHF)
    Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
    Therapy - ICD (implanted 97, 01, 04 and 11, medication
    Currently not obstructed
    Complications - unnecessary pacemaker and stroke (unrelated to each other)

  • #2
    Re: GOOD news!

    Big hugs to him and his family. I'm so happy his ICD was there.... I'm near tears here. I wanna know if he didn't tell anyone at the school. He must've been scared. I know I would've been. Anyway, wondering about how he managed to keep that big a "secret." But sounds like he took it all in stride. Yippeeee!!!!!!

    Reenie
    Reenie

    ****************
    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.

    Comment


    • #3
      Re: GOOD news!

      He said it felt like he got hit in the stomach... the teacher knew but he said he was fine and WANTED to go to class!
      What a kid!
      Lisa
      Knowledge is power ... Stay informed!
      YOU can make a difference - all you have to do is try!

      Dx age 12 current age 46 and counting!
      lost: 5 family members to HCM (SCD, Stroke, CHF)
      Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
      Therapy - ICD (implanted 97, 01, 04 and 11, medication
      Currently not obstructed
      Complications - unnecessary pacemaker and stroke (unrelated to each other)

      Comment


      • #4
        Re: GOOD news!

        wow This little guy is more of a man than i am because when mine goes off I holler out . But Lisa you are right if it wasnt there instead of growing tomatoes I would be growing "daisies"!! This is probably not the place for my humor ,but hey ya gotta laugh or it will drive ya nuts.(mine has fired 7 times since 9/25/2002) But I think we have gotten things back under control for now!!
        Rich
        Allways remember you cannot control the wind!!
        However you can adjust your sails!!

        Comment


        • #5
          Re: GOOD news!

          Rich, I'm glad to see that you're still with us after all that!

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

          Comment

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