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coming to an ICD near you...


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Sarah Find out more about Sarah
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  • coming to an ICD near you...

    They are developing ICD leads that make MRIs safe for ICD owners:

    Cynaburst! Just for YOU.


  • #2
    VERY cool. Thanks, Sarah.


    Husband has HCM.
    3 kids - ages 23, 21, & 19. All presently clear of HCM.


    • #3

      Do you know that I even talked to the President of this company over the phone when I was making my decision whether or not to get the ICD. It turns out he is a friend of a friend. I can't seem to make the link work right now, so I can't see exactly what this press release says, but he told me that FDA approval for all of this stuff was years away, and that there was some type of less powerful MRI machine that would probably be good enough for a brain MRI if I needed one now, even with the ICD.

      Anyway, I hope they get all of this technology working. Of course, now that I have a regular ICD, I am not in a big hurry to have a lead extraction and re-implantation, but this same company is also working on shield technology.

      There is hope for all of us bionic people!
      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.


      • #4
        This is years and years away from reality.. PLEASE do not use this information to detirmine what type of device you are going to get. The FDA takes many years to review such information.
        This is our future....not our today... and we must live in today.
        Knowledge is power ... Stay informed!
        YOU can make a difference - all you have to do is try!

        Dx age 12 current age 46 and counting!
        lost: 5 family members to HCM (SCD, Stroke, CHF)
        Others diagnosed living with HCM (or gene +) include - daughter, niece, nephew, cousin, sister and many many friends!
        Therapy - ICD (implanted 97, 01, 04 and 11, medication
        Currently not obstructed
        Complications - unnecessary pacemaker and stroke (unrelated to each other)


        Today's Birthdays