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Cynaburst-How are you??

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heather Find out more about heather
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  • Cynaburst-How are you??

    Cynthia,

    Have you had your implant yet? Just wondering how you are!! My computer crashed and I lost everything, so I don't have your email address anymore. Write me!

    Heather
    Heather, 43, non-obstructive HCM, dx'd at age 14, AICD implanted 11-02, PVAI ablation done for a-fib and a-flutter 5-2010. 2nd PVAI done for a-flutter and a-tach 3-2014. 3rd PVAI for a-flutter June 2015, dr forgot to reset ICD settings and I went into vt and almost died, July 2015, July 2015-started tx work up, October 2015, put on list in Dallas and tx'd on November 14, 2015.

  • #2
    Hi Heather,

    I will write you privately also, but I am having it next Thursday. The doctor is currently in China, but will be back next week.
    Daughter of Father with HCM
    Diagnosed with HCM 1999.
    Full term pregnancy - Son born 11/01
    ICD implanted 2/03; generator replaced 2/2005 and 2/2012
    Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

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    • #3
      further info. on me

      For anyone else who is interested, I am getting a Medtronic ICD next week. I am a 38 year old woman with a questionable family history and documented NSVT which seems to be getting worse. I also have had a recent pre-syncope episode, so after 4 opinions and additional testing, all docs voted for the ICD, even though I can't have MRI's any longer to follow my benign brain tumor which was removed last year.

      (The brain surgeon said that CT scans would be good enough, and that I am probably cured anyway...at least I hope!) The way I look at it, there is too much $$$$ invested in me at this point to not get an ICD. The brain surgeries cost around $350K, so what's another $75K to my insurance co.

      Besides, my toddler son would probably rather that I stay around to drive him to pre-school!
      Daughter of Father with HCM
      Diagnosed with HCM 1999.
      Full term pregnancy - Son born 11/01
      ICD implanted 2/03; generator replaced 2/2005 and 2/2012
      Myectomy 8/11/06 - Joe Dearani - Mayo Clinic.

      Comment


      • #4
        you

        Dear Cyn,

        I'm VERY glad you are getting an ICD. Keep us posted on how you are doing.

        Scan technology is going gangbusters, so I'm sure the CT and PETs, etc. will be great.

        Take care,

        S

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        • #5
          Cynthia,

          I'll be thinking of you. Take care of yourself and keep us posted.

          Reenie
          Reenie

          ****************
          Husband has HCM.
          3 kids - ages 23, 21, & 19. All presently clear of HCM.

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