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These posting are geared toward dealing
with family issues surrounding living with HCM. Parents who are faced with
the diagnosis of a child and dealing with the questions and concerns about
participation in athletic events should post here. If your spouse or other
loved one is diagnosed this is a wonderful place to meet others in a similar
situation.
Topics: 646
Posts: 6,128
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646 | 6,128 |
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Nearly all of those with HCM are on some type of medical
management. Share your thoughts, questions and concerns with others
regarding medications here.
Topics: 863
Posts: 6,133
Last Post:
MyoKardia - MYK-461 new HCM medication
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863 | 6,133 |
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Those with implantable devices are invited here
to share there stories of survival, implantation and life with a device.
Those who may be evaluation there need for a device are welcome here to
share their thoughts with those living with devices.
Topics: 1,087
Posts: 8,463
Last Post:
Low Risk but Recommended to get an ICD
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1,087 | 8,463 |
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Choosing between which
procedure can be very difficult, visit here to discuss your questions and
concerns with those who have already been there. Those who have had these
procedures done are encouraged to visit here and help those heading down the
path to septal reduction.
Topics: 1,225
Posts: 15,433
Last Post:
Robotic Myectomy anyone?
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1,225 | 15,433 |
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This section is dedicated to those who are evaluating their need of a heart transplant, those currently on a waiting list for a transplant and those who have previously had a heart transplant due to HCM. It should be noted that transplants in HCM are rare; approximately 2-3% of those with HCM will need transplants. We hope this area is helpful to those facing this challenging topic.
Topics: 394
Posts: 4,300
Last Post:
Article about Lisa's Transplant
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394 | 4,300 |
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This area of the message board is for use by our young adult/teenage users (14-23 yrs old - as a suggestion). It will be moderated by adults. However, posts are FOR young adults and teens. You older folks give them a little space - chime in if you can share some ideas or experiences...but give then the space they need to talk to each other. Keep the language clean, the topics appropriate and have a good time talking to each other!
Topics: 106
Posts: 758
Last Post:
just diagnosed with HCM
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106 | 758 |
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It is nice to know when people are attending various centers for treatment, evaluation or for other reasons. This is NOT a forum for dialog it is for the purpose of letting others know where you are and helping you arrange meeting others, if you so wish. This will be a moderated portion of the site and only those posts approved will be posted here.
Example: Lisa will be at NEMC on January 9, 2006 for the day and would be interested in getting together with other HCM'ers after 6pm Please send a PM.
Topics: 282
Posts: 2,245
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282 | 2,245 |
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