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These posting are geared toward dealing
with family issues surrounding living with HCM. Parents who are faced with
the diagnosis of a child and dealing with the questions and concerns about
participation in athletic events should post here. If your spouse or other
loved one is diagnosed this is a wonderful place to meet others in a similar
situation.
Topics: 648
Posts: 6,130
Last Post:
Introduction
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648 | 6,130 |
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Nearly all of those with HCM are on some type of medical
management. Share your thoughts, questions and concerns with others
regarding medications here.
Topics: 872
Posts: 6,175
Last Post:
How long to adjust to a new med?
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872 | 6,175 |
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Those with implantable devices are invited here
to share there stories of survival, implantation and life with a device.
Those who may be evaluation there need for a device are welcome here to
share their thoughts with those living with devices.
Topics: 1,095
Posts: 8,494
Last Post:
Access to ICD data is every patient's right
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1,095 | 8,494 |
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Choosing between which
procedure can be very difficult, visit here to discuss your questions and
concerns with those who have already been there. Those who have had these
procedures done are encouraged to visit here and help those heading down the
path to septal reduction.
Topics: 1,237
Posts: 15,514
Last Post:
Septal Myectomy at Tufts
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This section is dedicated to those who are evaluating their need of a heart transplant, those currently on a waiting list for a transplant and those who have previously had a heart transplant due to HCM. It should be noted that transplants in HCM are rare; approximately 2-3% of those with HCM will need transplants. We hope this area is helpful to those facing this challenging topic.
Topics: 394
Posts: 4,304
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This area of the message board is for use by our young adult/teenage users (14-23 yrs old - as a suggestion). It will be moderated by adults. However, posts are FOR young adults and teens. You older folks give them a little space - chime in if you can share some ideas or experiences...but give then the space they need to talk to each other. Keep the language clean, the topics appropriate and have a good time talking to each other!
Topics: 109
Posts: 768
Last Post:
21 years old, diagnosed with HoCM
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It is nice to know when people are attending various centers for treatment, evaluation or for other reasons. This is NOT a forum for dialog it is for the purpose of letting others know where you are and helping you arrange meeting others, if you so wish. This will be a moderated portion of the site and only those posts approved will be posted here.
Example: Lisa will be at NEMC on January 9, 2006 for the day and would be interested in getting together with other HCM'ers after 6pm Please send a PM.
Topics: 282
Posts: 2,247
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If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below.
Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you
- If this is your first visit, be sure to check out the FAQ by clicking the link above. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below.
- Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. As a good practice screen names should not be "full legal names" as we can not full assure your privacy from search engines if your FULL name appears on the messageboard
- All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination.