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Family Members/Parents
These posting are geared toward dealing
with family issues surrounding living with HCM. Parents who are faced with
the diagnosis of a child and dealing with the questions and concerns about
participation in athletic events should post here. If your spouse or other
loved one is diagnosed this is a wonderful place to meet others in a similar
situation.
Topics: 648
Posts: 6,130
Last Post:
Introduction
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648 | 6,130 | |
Medications
Nearly all of those with HCM are on some type of medical
management. Share your thoughts, questions and concerns with others
regarding medications here.
Topics: 873
Posts: 6,177
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873 | 6,177 | |
Devices (ICD,Pacer,Reveal)
Those with implantable devices are invited here
to share there stories of survival, implantation and life with a device.
Those who may be evaluation there need for a device are welcome here to
share their thoughts with those living with devices.
Topics: 1,096
Posts: 8,496
Last Post:
Riding motorcycle with ICD
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1,096 | 8,496 | |
Septal Reduction (Myectomy/Alcohol septal ablation/other)
Choosing between which
procedure can be very difficult, visit here to discuss your questions and
concerns with those who have already been there. Those who have had these
procedures done are encouraged to visit here and help those heading down the
path to septal reduction.
Topics: 1,237
Posts: 15,514
Last Post:
Septal Myectomy at Tufts
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1,237 | 15,514 | |
Transplants - Pre and Post
This section is dedicated to those who are evaluating their need of a heart transplant, those currently on a waiting list for a transplant and those who have previously had a heart transplant due to HCM. It should be noted that transplants in HCM are rare; approximately 2-3% of those with HCM will need transplants. We hope this area is helpful to those facing this challenging topic.
Topics: 395
Posts: 4,306
Last Post:
My Poor Prognosis Is a Secret
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395 | 4,306 | |
The "Hang Out"
This area of the message board is for use by our young adult/teenage users (14-23 yrs old - as a suggestion). It will be moderated by adults. However, posts are FOR young adults and teens. You older folks give them a little space - chime in if you can share some ideas or experiences...but give then the space they need to talk to each other. Keep the language clean, the topics appropriate and have a good time talking to each other!
Topics: 109
Posts: 770
Last Post:
21 years old, diagnosed with HoCM
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109 | 770 | |
Upcoming trip to HCM Center
It is nice to know when people are attending various centers for treatment, evaluation or for other reasons. This is NOT a forum for dialog it is for the purpose of letting others know where you are and helping you arrange meeting others, if you so wish. This will be a moderated portion of the site and only those posts approved will be posted here.
Example: Lisa will be at NEMC on January 9, 2006 for the day and would be interested in getting together with other HCM'ers after 6pm Please send a PM.
Topics: 282
Posts: 2,247
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282 | 2,247 |