If this is your first visit, be sure to check out the FAQ in HCMA Announcements. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. Your Participation in this message board is strictly voluntary. Information and comments on the message board do not necessarily reflect the feelings, opinions, or positions of the Hypertrophic Cardiomyopathy Association. At no time should participants to this board substitute information within for individual medical advice. The Hypertrophic Cardiomyopathy Association shall not be liable for any information provided herein. All participants in this board should conduct themselves in a professional and respectful manner. Failure to do so will result in suspension or termination. The moderators of the message board working with the HCMA will be responsible for notifying participants if they have violated the rules of conduct for the board. Moderators or HCMA staff may edit any post to ensure it conforms with the rules of the board or may delete it. This community is welcoming to all those with HCM we ask that you remember each user comes to the board with information and a point of view that may differ from that which you hold, respect is critical, please post respectfully. Thank you


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Directory Topics Posts Last Post
Topics: 68 Posts: 85
68 85
HCMA Announcements
This area is where you can find out all that is going on at the HCMA by reading the UPDATES and ANNOUNCEMENTS made by our President, Board Members and HCMA staff.
You may make comment to most postings but may not start new discussions here. Use the more appropriate forum areas to start new threads.
Topics: 330 Posts: 1,715
330 1,715
HCMA General Forums
HCMA Discussion
This area is where you can find out all that is going on at the HCMA by reading the ongoing discussions. This is also a good area to vent concerns over the disease to share your thoughts, concerns and fears with others. However, we do ask that you please direct specific questions to the appropriate forum topic area.
Note: Topics may be moved to more appropriate forum areas if they become too specific.
Topics: 6,204 Posts: 27,699
6,204 27,699
General Discussion (non-health related)
Here is where you can discuss anything from current events to birthday wishes and caviar dreams. However, we request that any discussion about health or the HCMA be directed to the appropriate topic areas.
Note: Topics may be moved to more appropriate forum areas if they become health related.
Topics: 940 Posts: 5,646
940 5,646
Ask the HCMA!
This area is where you can ask any question and someone from the staff and moderator team will respond.
Note: this is area is limited to only posting new questions. Replies can only be made by HCMA Moderators and Staff. Any further discussion should be made in the appropriate topic areas.
Topics: 2,429 Posts: 15,970
2,429 15,970
Get The Word Out!
Have you ever thought to yourself “what can I do to help educate the medical community about HCM”? We know many of you have and we have created a program to help YOU and your community “Get the Word OUT!” ™. Share your ideas on how to "Get the Word OUT!" in your community!
Topics: 129 Posts: 347
129 347
Screening our Youth for HCM
There has been a great deal of public debate on the role of screening children for HCM and other cardiac diseases. This is an area that would best be defined as evolving and controversial. This section of the message board is for the discussion of the concept of screening and all of the potential issues around this issue.
Topics: 38 Posts: 154
38 154
HCM Support Forums
Family Members/Parents
These posting are geared toward dealing with family issues surrounding living with HCM. Parents who are faced with the diagnosis of a child and dealing with the questions and concerns about participation in athletic events should post here. If your spouse or other loved one is diagnosed this is a wonderful place to meet others in a similar situation.
Topics: 654 Posts: 6,140
654 6,140
Nearly all of those with HCM are on some type of medical management. Share your thoughts, questions and concerns with others regarding medications here.
Topics: 1,183 Posts: 6,585
1,183 6,585
Devices (ICD,Pacer,Reveal)
Those with implantable devices are invited here to share there stories of survival, implantation and life with a device. Those who may be evaluation there need for a device are welcome here to share their thoughts with those living with devices.
Topics: 1,100 Posts: 8,501
1,100 8,501
Septal Reduction (Myectomy/Alcohol septal ablation/other)
Choosing between which procedure can be very difficult, visit here to discuss your questions and concerns with those who have already been there. Those who have had these procedures done are encouraged to visit here and help those heading down the path to septal reduction.
Topics: 1,241 Posts: 15,519
1,241 15,519
Transplants - Pre and Post
This section is dedicated to those who are evaluating their need of a heart transplant, those currently on a waiting list for a transplant and those who have previously had a heart transplant due to HCM. It should be noted that transplants in HCM are rare; approximately 2-3% of those with HCM will need transplants. We hope this area is helpful to those facing this challenging topic.
Topics: 395 Posts: 4,306
395 4,306
Donna B
by Donna B
The "Hang Out"
This area of the message board is for use by our young adult/teenage users (14-23 yrs old - as a suggestion). It will be moderated by adults. However, posts are FOR young adults and teens. You older folks give them a little space - chime in if you can share some ideas or experiences...but give then the space they need to talk to each other. Keep the language clean, the topics appropriate and have a good time talking to each other!
Topics: 109 Posts: 771
109 771
Upcoming trip to HCM Center
It is nice to know when people are attending various centers for treatment, evaluation or for other reasons. This is NOT a forum for dialog it is for the purpose of letting others know where you are and helping you arrange meeting others, if you so wish. This will be a moderated portion of the site and only those posts approved will be posted here.
Example: Lisa will be at NEMC on January 9, 2006 for the day and would be interested in getting together with other HCM'ers after 6pm Please send a PM.
Topics: 282 Posts: 2,247
282 2,247
Lifestyle Forums
Diet and Exercise
We all know that diet and exercise are important to everyone, but those with HCM face challenges in this area. This section of the forum is dedicated to discussion about weight loss, weight maintainence and exercise. This is not a forum for the discussion of competitive athletics in HCM but rather healthy diet and exercise discussion, tips and share experiences.
Topics: 128 Posts: 1,466
Last Post: My simple diet
128 1,466
Lifestyles and Recreation
Discussions over your lifestyle issues from occupational matters to weekend recreation.
Topics: 270 Posts: 2,734
270 2,734
Time to Laugh
Face it this is heavy subject matter...but we all must remember to sit back and laugh from time to time! Please post your favorite, joke, stories or whatever it is that makes you laugh and share a smile with the rest of us!
Topics: 438 Posts: 1,482
438 1,482
While the HCMA does not subscribe to any one religious belief we recognize that there is a great need for spiritual healing and guidance when faced with a lifelong medical condition. We have asked several members of the HCMA, who happen to be religious leaders in various houses of worship to moderate this portion of the message board to assist you in any way they can.
IMPORTANT NOTICE - This area should not be used to forward the beliefs or practices of any one particular religion and all view points are to be respected.
Topics: 202 Posts: 1,975
202 1,975
Medical Research Forums
News Releases and Media
The HCMA will keep you updated on events, news stories and all media issues relevant to the HCM Community.
Note: Only HCMA Staff may begin new topics here. Please forward any relevant information to the staff for consideration of posting.
Topics: 400 Posts: 1,243
400 1,243
Reporting Sudden Deaths
This is an area reserved for our readers, members and friends to share stories of sudden death. We are seeking to assist the research community in gaining a better understanding of the true number of sudden deaths and as much detailed information about the person and activities they were involved with prior to the death.
We ask you to provide name, date of death, age, location, a brief discription of what the person was doing prior to the SD and any family history you may know. These deaths need not be related to you, please include news clippings from your local papers as well as family situations.
Note: This is not a discussion board. Any discussion of the events noted here should be placed in an appropriate area.
Topics: 420 Posts: 1,290
420 1,290
Research Updates ONLY
This is a area where the HCMA Staff will post relevant information on a regular basis. We will also post notices of research projects currently ongoing, therefore you may choose to contact these centers to participate in research.
Topics: 20 Posts: 38
20 38
How to Contact the HCMA
Click here for the Hypertophic Cardiomyopathy Association contact information
Topics: 3 Posts: 5
3 5

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